There is a small bond between people with seizures and families and friends of people with seizures. You can’t quite understand it until you are “in” the situation yourself. BUT, if you have them yourself, or if you are really close to a person who has them… you get it.
You instantly understand how hard it is. You instantly understand each other and what they’ve been through. While all the stories and experiences are different… they all are the same, too. There is a bond there.
Why am I saying all this you are probably wondering?
Today, one of my co-workers (he is new and pretty much awesome) asked me if I had a minute. “Of course… come on in.” He explained to me that he had heard I had epilepsy and wanted to know if we could talk about it.
I’m never shy about answering questions, although when somebody comes specifically to talk about that part of my life, it usually means something.
Turns out, his seven year old has seizures. We talked for a while about treatments, medicines, horrible side effects of medicines, doctors, what it’s like to live with epilepsy, what it’s like to be the family member of someone living with epilepsy… pretty much anything and everything.
He said something to me that meant the world to me… and I just had to share it with you all.
He said, “When I heard you had seizures, I couldn’t believe it. It made me feel so relieved to know that you have them and lead such a successful life…”
There was more, but you get the gist.
That’s the biggest compliment ever. I sometimes feel extremely, EXTREMELY discouraged knowing I am different… knowing I am not able to do all the things I always want to because I have seizures. BUT, hearing that I am somebody others are looking to for a “success” story, well… it feels good and it honestly afterwards, it brought a tear to my eye. I never thought I’d be the girl somebody else looked to as a “success” story.
Having seizures absolutely sucks… having to be on tons of medications absolutely sucks… having the side effects of tons of medications absolutely sucks… but with all that, knowing I can give somebody hope for their child… well, it makes it all worth it.